>>25654105 Nice indeed. I bet non of you have such a rare disease

>>25654079 AIDS isn't that rare

>>25654079 So does me mum. What condition is it, exactly?

>>25654173 Primary myelofibrosis.

Hoholism isn't that rare.

>>25654288 wiki says that US pharma companies are launching new meds for this condition as we speak what is Ukrainian medical service treating you with? allopurinol?

>>25654330 >allopurinol That's an addition. The main treatment is Hydrea. Though it just mitigates the symptoms until the blood gets completely fucked and I'm dood. What are they launching though? Is it ruxolitinib? Because if it is, it's unaffordable for me.

>>25654356 >ruxolitinib yeah, this one. but they have 3 more drugs approved recently. >In August 2019, the FDA approved fedratinib (Inrebic) as a treatment for adults with intermediate-2 or high-risk primary or secondary (post-polycythemia vera or post-essential thrombocythemia) myelofibrosis (MF).[29] >In March 2022, the FDA approved pacritinib (Vonjo) with an indication to treat adults who have intermediate or high-risk primary or secondary myelofibrosis and who have platelet (blood clotting cells) levels below 50,000/μL.[30] >Momelotinib (Ojjaara) was approved for medical use in the United States in September 2023.[31] It is indicated for the treatment of intermediate or high-risk myelofibrosis, including primary myelofibrosis or secondary myelofibrosis [post-polycythemia vera and post-essential thrombocythemia], in adults with anemia

>>25654356 btw, hydrea is some 1967 medicine